WHEN PROSTATITIS DOESN’T GO AWAY: ONE MAN’S STORY
For many men, the symptoms of prostatitis appear suddenly and then go away with treatment. For these men, prostatitis is an awful episode to endure and then put behind them; it does not require a lifetime adjustment. But for Alan, a 52-year-old Baltimore attorney with perhaps a “worst-case” scenario of nonbacterial prostatitis, the situation is distinctly different.
His trouble began three years ago. He’d had some minor prostate “episodes” before that, he says, but nothing like this. Then, after seeking treatment for a headache, he was prescribed a migraine medication, in a class of drugs called tricyclic antidepressants. “What it [the drug] did, was slow down my urine flow terrifically.” Within a couple of days, Alan began noticing some new symptoms: “I found I was spending a lot of time going to the bathroom, and I developed some stinging, and a lot of nonspecific symptoms like headaches— just not feeling well. The first time I had sex after that [developing these symptoms], it was painful, and I was sore for a day or two afterward,” with pain in the lower abdomen, scrotum and perineum.
Eventually, Alan was diagnosed as having nonbacterial prostatitis. “The symptoms ebb and flow, but they haven’t disappeared,” he says. These include reduced urine stream; occasional difficulty starting and stopping urination; generalized pain in the perineal region, usually beginning about twelve to fifteen hours after sexual intercourse and lasting two to three days; and “just feeling lousy.” He’s also been awakened by muscle spasms in his perineal region, but he can’t pinpoint an exact location. He tried abstaining from sexual intercourse, but that didn’t help.
At first, Alan had what he describes as “menopausal-type” feelings, accompanied by a lot of anxiety: “When this first came on, because of that fear of losing something very special to me, I think there was a heightened sense of sexual drive or desire, which was of course immediately frustrated by the inability to do anything about the symptoms.” And he thought, “Is this going to be a permanent impairment, will this limit sexual activity and the free expression of physical love in my marriage? Is this going to be the end of a chapter in my life?”
Alan’s suggestions for men with his condition: “First, just try to have a positive oudook on being able to live with this situation. With time, there comes a better ability to adjust and accept what is really a very annoying and irritating condition.”
He was treated early on by an internist, who described Alan’s problem as “prostatosis,” a vague, unhelpful term that means simply “a condition of the prostate.” Another word of advice: “Don’t let anybody tell you it’s all in your head.” Alan even consulted a psychiatrist, who confirmed that prostatitis is “a real, live condition that could not be explained solely by psychological causes.”
“Sometimes the symptoms are worse than others,” Alan says; “I can’t determine what makes them different. There just isn’t any clear-cut pattern. I guess part of this experience has been simply accepting the condition.”
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